Dr Peter Barry
Consultant Respiratory Physician, Manchester Adult Cystic Fibrosis Centre
Dr. Barry is a Consultant Respiratory Physician with a special interest in cystic fibrosis. He graduated from University College Cork in 2002 and completed higher specialist training in Respiratory and General Internal Medicine in the Republic of Ireland. He has worked as a clinical research fellow in cystic fibrosis in the National Referral Centre for Cystic Fibrosis in Ireland based in St. Vincent’s University Hospital in Dublin culminating in the award of an MD degree. He joined the University Hospital of South Manchester in 2012 and works as a Consultant Respiratory Physician in the Manchester Adult Cystic Fibrosis Centre. He is an Honorary Senior Lecturer with the University of Manchester. He has a keen interest in
clinical research in CF and in particular the clinical applications of novel therapies. He has been an invited speaker at numerous national and international meetings particularly in the area of CFTR modulation. He has served as a clinical expert on NICE evaluations of new therapies in CF. He is the co-chair of the Manchester Cystic Fibrosis Conference.
Professor Andrew Jones
Director of the Manchester Adult Cystic Fibrosis Centre
The Manchester Adult Cystic Fibrosis Centre is one of the largest in the country and currently provides care for over 450 adults with cystic fibrosis from the North West of England. Prof Jones is actively involved in clinical research and has published over 100 papers and co-authored a number of national guidelines for cystic fibrosis, including the recent NICE clinical guidelines for CF care. Prof Jones is a member of the Clinical Reference Group for Specialised Respiratory Services for NHS England and is also a Trustee of the Cystic Fibrosis Trust. He participates in work for the US Cystic Fibrosis Foundation Data Safety Monitoring Board and as a steering committee member for a number of national multicentre studies.
Dr Alex Horsley
Senior Lecturer, University of Manchester and Consultant Manchester Adult CF Centre
Dr Horsley is an NIHR-funded clinical academic at the University of Manchester and consultant at the Manchester Adult Cystic Fibrosis Centre. He is academic lead for the CF Centre where he leads a programme of basic science and clinical research as part of The University of Manchester NIHR Biomedical Research Centre in Respiratory Medicine. His main work focuses on novel technologies and clinical applications for lung clearance index (LCI), how this relates to clinical outcomes and imaging, and encompasses all age groups from infants to adults. He is deputy director of the NIHR Manchester Clinical Research
Facility at Wythenshawe Hospital and leads a wide range of clinical trials in CF, including phase 1, both as principal and chief investigator. Dr Horsley has contributed to national policy on CF medications, to international guidelines on multiple breath washout, and is chief editor and author of the Oxford University Press Handbook on CF.
Dr Helen Oxley
Consultant in Clinical Psychology, Manchester Adult Cystic Fibrosis Centre
Dr Helen Oxley completed training as a clinical psychologist in 1992, and has worked in the speciality of physical health for most of her career to date. Helen is currently Consultant Clinical Psychologist at the Manchester Adult Cystic Fibrosis Centre where she leads a small psychology team, and has worked within this large CF unit since 1997. She has contributed to several texts on psychological aspects of CF and frequently presents at CF conferences on a wide variety of psychological issues for people with CF, their families and their healthcare teams. Helen also provides a wide-ranging psychological therapy service to
patients at all stages of CF and also works closely with the MDT to optimise psychological care for people with CF, through service development, consultation, joint working, research and training. Helen is also current co-chair of the UK Psychosocial Professionals in CF, the group for all psychologists and social workers working in CF centres in the UK.
Professor A Kevin Webb
Previous Clinical Director, Manchester Adult Cystic Centre
Professor Webb trained as a doctor in London and then immigrated to the North West. With Mary Dodd in 1982 he established an adult Cystic Fibrosis Unit in the North West. Professor Webb is involved with the clinical care of CF adults the politics and business management of the unit. Professor Webb has sat on National and International Committees engaged in improving CF care. Professor Webb has gone part time and visits the CF Unit 3 days a week as his social club
Professor Scott Bell
Executive Director – Research, MNHHS and a Senior Physician of the Adult CF Centre at TPCH
Professor Scott Bell is Executive Director – Research, MNHHS and a Senior Physician of the Adult CF Centre at TPCH (>300 patients) where he has worked since 1996. He is currently the Editor-in-Chief of the Journal of Cystic Fibrosis. He leads the Lung Bacteria Laboratory at QIMR Berghofer Medical Research Institute in Brisbane. Scott has over 180 peer reviewed publications and has received grant support in excess of $10 million over the past 10 years. His research interests include the CF microbiology, acquisition pathways for human infection and he has a long history of supporting multi-disciplinary research.
Professor Edward McKone
Consultant Respiratory Physician, National Referral Center for Adult CF, St Vincent’s University Hospital and Clinical Professor, UCD
Professor Edward McKone is a Consultant Respiratory Physician in the National Referral Center for Adult Cystic Fibrosis, St. Vincent’s University Hospital and Clinical Professor, University College Dublin. A graduate of Trinity College Dublin, he completed his initial respiratory training including doctoral thesis in St. Vincent’s University Hospital. He subsequently entered a 3 year fellowship in Pulmonary and Critical Care Medicine at the University of Washington, Seattle followed by 4 years on faculty as an Assistant Professor in Pulmonary and Critical Care Medicine. During his time in Seattle, he completed a MSc in Genetic Epidemiology. In 2006, he was appointed to St. Vincent’s University Hospital, Dublin where he is currently a respiratory physician with clinical and research interests in the
areas of cystic fibrosis, clinical epidemiology and bronchiectasis. He has been the Director of the European CF Patient Registry and is the current Director of the Irish CF Patient Registry.
Professor Chris van der Gast
Professor of Microbiology, Manchester Metropolitan University
Chris is Professor of Microbiology at Manchester Metropolitan University. He is also visiting Professor of Microbial Ecology at the University of Warwick and Fellow in Microbiomics at the NERC Centre for Ecology & Hydrology. His research is focused on the role of infection microbiota in chronic lung disease progression. In order to unravel the complexity of microbiomes in lung disease, he exploits and adapts models, theories, and principles from traditional ecology, coupled with ever improving developments in high-throughput sequencing technologies.
Dr Miles Denton
Consultant Microbiologist, Leeds Teaching Hospital NHS Trust
Dr Miles Denton is a consultant microbiologist at the Leeds Teaching Hospitals NHS Trust and has had a long standing interest in CF Microbiology. His MD thesis was entitled “The epidemiology of Stenotrophomonas maltophilia isolated from children with cystic fibrosis” and, along with colleagues from the Leeds Adult and Paediatric CF Centres, has contributed to over 40 publications in peer reviewed journals linked to CF Microbiology. He has contributed to a number of UK CF Trust Working Parties developing guidelines linked to antimicrobial therapy and Infection Prevention in CF and chaired the group that developed laboratory standards for CF Microbiology. He has previously been a member of the Scientific Committee of the European CF Conference and is currently co-chair of the Microbiology sub-group of the ECFS Clinical Trials Network
Professor Havi Carel
Professor of Philosophy, University of Bristol
Professor Havi Carel is Professor of Philosophy at the University of Bristol, where she also teaches medical students. Her research examines the experience of illness and of receiving healthcare. She is currently completing a monograph for Oxford University Press, provisionally entitled Phenomenology of Illness. She was recently awarded a Senior Investigator Award by the Wellcome Trust, for a five year project entitled ‘The life of breath’ (with Prof Jane Macnaughton, Durham University). She has written on the embodied experience of illness, wellbeing within illness and patient-clinician communication in the Lancet, BMJ, Journal of Medicine and Philosophy, Theoretical Medicine and Bioethics, Philosophia and in edited collections.
Dr Samantha Phillips
Clinical Psychologist, Bristol Adult and Paediatric Services
Dr Phillips is a clinical psychologist in the paediatric and adult CF services in Bristol where she has worked for the last 10 years developing the psychology service for the patients in the South West. She is committee member of the UK psycho-social professionals group and has an active interest in ensuring that they develop ways to best help patients to adjust to an ever changing world of CF medical care so that all patients are encouraged to live the lives they want to.
Clinical Specialty Lead for the adult CF therapies team, Royal Brompton Hospital
Fiona is the Clinical Specialty Lead for the adult CF therapies team at the Royal Brompton Hospital. She started her career at Southampton University Hospital before moving to the Royal Brompton in 2010. Fionacompleted a Master’s degree in Advanced Cardiorespiratory Physiotherapy at the University of Hertfordshire in 2015. Her areas of special interest are quality improvement and innovation in healthcare, non-invasive ventilation and end of life care.
Professor Helge Hebestreit
Professor of Peadiatrics and Director of the CF Centre, Würzburg, Germany
Professor Hebestreit received his medical training in Würzburg between 1982 and 1989 and continued his education in Würzburg for specialisations in paediatrics, sports medicine, and paediatric pulmonology. During a 2-year post-doctoral fellowship with Prof. Dr. Oded Bar-Or from McMaster University in Hamilton/Ontario, Canada, Prof. Hebestreit participated in research involving children with chronic health conditions and physical exercise. This topic remained the focus of his scientific interest thereafter. Since 1998, Prof. Hebestreit studied together with his wife, a paediatrician running the CF clinic in Würzburg, the effects of physical exertion and physical training on patients with cystic fibrosis. Prof. Hebestreit is the coordinator of the Exercise Working Group of the European Cystic Fibrosis Society and principal investigator of the international multi-centre study ACTIVATE-CF which actually assesses the effects of an exercise program in CF.
Professor Alan Smyth
Professor of Child Health, University of Nottingham and Honorary Consultant in Paediatric Respiratory Medicine, Nottingham University Hospitals NHS Trust
Professor Alan Smyth is Professor of Child Health at the University of Nottingham and Honorary Consultant in Paediatric Respiratory Medicine at Nottingham University Hospitals NHS Trust. His major research interests are in novel ways of treating infection in cystic fibrosis (CF) and strategies to detect and minimise the adverse effects of treatment. He has led a James Lind Alliance Priority Setting Partnership which worked with clinicians and patients to decide the top 10 priorities for clinical research in CF. Prof Smyth is Co-ordinating Editor of the Cochrane Cystic Fibrosis & Genetic Disorders Group and Joint Editor in Chief of Thorax. When not working, he is a keen cyclist and pilot.
Specialist Physiotherapist for Cystic Fibrosis, York Hull Adult Cystic Fibrosis Centre and guest lecturer, Leeds Beckett University
I qualified as a physio in 1999 and, while doing my junior physio job, worked for a few months at the adult CF centre at Wythenshawe. I decided that this was something I wanted to do in the longer term and so got a job at the Royal Brompton hospital in London where I spent a few years rotating around different respiratory areas including lots of work with children and adults with CF. I then moved to a senior physio job at the Leeds adult CF unit for seven years. During my time at Leeds I completed a master’s degree in the management of long term health conditions and did some research about how well people manage to take nebulised treatment. I also started lecturing at Leeds Metropolitan University; teaching physio in training about oxygen, nebulisers, etc. I moved to York in October 2010 to lead the adult CF physio service here. I am chair of the ACPCF which is a group of physio who all work in CF. I lecture at different meetings about CF physio and about the research I have published. I have also been involved in creating guidelines about physio for people
with CF. I have been back at university and have completed a course in non-medical prescribing; this means that I can prescribe some of the treatment which you are on or starting. The CF team hope that, by more of us being able to prescribe your treatment, you will have fewer delays in starting or getting treatment and that you will have more members of the team to go to for medication advice.
Principal Physiotherapist, West of Scotland Adult CF Unit
Lisa has been working as a physiotherapist in Cystic Fibrosis for 23 years; initially in paediatrics and for the last 17 years with adult CF patients. Lisa is the Principal Physiotherapist at the West of Scotland Adult CF unit in Glasgow. She is also currently the Chair of the CF physiotherapy clinical interest group ACPCF. She has contributed to and co-edited the 2017 “Standards of Care & Good Clinical Practice” for the physiotherapy management of CF. Lisa led on the 2010 UK “National audit of physiotherapy standards of care” and has recently completed the re-audit evaluating the developments in service provision across CF centres in the UK. Lisa is the physiotherapy representative on The UK Cystic Fibrosis Trust Mycobacterium abscesses Infection Control Working Group.
Respiratory Medicine Trainee, North West Deanery
Rob qualified from The University of Manchester in 2006. He has completed medical training locally in hospitals in Manchester and Liverpool, as well as a period of 18 months slightly further afield in Newcastle, Australia. Currently Rob is a respiratory medicine trainee based in the Northwest deanery. He went out for his training program from 2015-2018 and worked at the Manchester adult CF centre for 3 years as a clinical fellow. During his time here he undertook a PhD project examining the relationship between gastro-oesophageal reflux and CF lung disease.
Dr William Flight
Consultant in Respiratory Medicine, Oxford University Hospitals NHS Foundation Trust and Director, Oxford Adult Cystic Fibrosis Centre
William graduated from the University of Sheffield in 2002. After house jobs in Stoke-on-Trent and Christchurch, New Zealand he trained in general and respiratory medicine in the north west of England. He spent three years as a clinical research fellow at the Manchester Adult Cystic Fibrosis Centre. During this time he was awarded a PhD from the University of Manchester for research into the role of viral respiratory infections in adults with CF. William took up his current post as a consultant in respiratory medicine at Oxford University Hospitals NHS Foundation Trust in 2014. He is the director of the Oxford Adult Cystic Fibrosis Centre and oversaw the relocation of the service to the John Radcliffe Hospital in 2016. He has published on various aspects of CF lung disease and has on-going research interests in respiratory microbiology and iron homeostasis in CF.
Professor Martin Walsaw
Consultant Chest Physician and Director of Specialist Regional CF Clinic, Liverpool Heart and Chest Hospital
Professor Martin Walshaw is a Consultant Chest Physician at the Liverpool Heart and Chest Hospital and Director of the Specialist Regional Adult CF Clinic there, which he founded in 1993 and which now caters for over 330 adults from Merseyside, North Wales, Cheshire, and the Isle of Man. He is past Chair of the British Thoracic Society Cystic Fibrosis Specialist Advisory Group, Chair of the UK CF Peer Review Oversight Board, and Chaired the NICE committee writing guidelines for CF Care in the UK. Professor Walshaw is heavily involved in medical education and is a Senior PACES Examiner and Secretary of the Respiratory Specialist Certificate Examination Board for the RCP. He has published over 100 peer reviewed papers and his major research interests include cross infection in CF and developments in CFRD. He was appointed Honorary Professor of Medicine at Liverpool University in 2014 in recognition of his achievements.
Professor Felix Ratjen
Division Chief of Paediatric Respiratory Medicine, Hospital for Sick Children and Professor of Paediatrics, University of Toronto
Dr. Felix Ratjen is the Division Chief of Paediatric Respiratory Medicine at The Hospital for Sick Children, Professor of Paediatrics at The University of Toronto, and Senior Scientist at the Research Institute in the Translational Medicine research program. He is co-leading the CF centre at SickKids and Medical Director of the Clinical Research Unit. Dr. Ratjen completed a majority of his medical education in Germany, along with a research fellowship at the Children's Hospital in Boston. He subsequently worked at the University of Essen, where he was appointed Deputy Chief of the Department of Paediatrics in 1998 and Professor of Paediatrics in 2001. Until 2005 he was the chief executive of the scientific board of the German CF foundation before relocating in Canada in the same year. He is an
the organizing committees of the major respiratory meetings (American Thoracic Society, European Respiratory Society and the North American CF conference), works on multiple grant review panels is a member of the several editorial boards including the American Journal of Respiratory and Critical Care Medicine, Thorax, Pediatric Pulmonology and the Journal of Cystic Fibrosis.
Professor Isabelle Fajac
Professor of Physiology, Cochin Hospital Cystic Fibrosis Centre
Prof. Isabelle Fajac (MD, PhD) received her medical training, post-graduate training and further specialisation in respiratory medicine at Assistance Publique-Hôpitaux de Paris and Paris Descartes University. She has completed a PhD on cystic fibrosis gene transfer at INSERM and Paris Descartes University. She is a pulmonologist and Professor of Physiology affiliated with the Cochin Hospital Cystic Fibrosis Centre, which cares for more than 400 adult cystic fibrosis patients and is the largest Cystic Fibrosis Centre in France. Prof. Isabelle Fajac has been Principal Investigator of several institutional and pharmaceutical clinical trials on cystic fibrosis and is Head of the Cystic Fibrosis Research Laboratory at Sorbonne Paris Cité University. She has been the Chair of ECFS-Clinical Trials Network from 2012 to 2014 and is the incoming ECFS President.